The Purpose of Life is to Live it..not to spend all of it searching for the purpose. Live Live Live like every second was your last.
Blogging frommy heart
Published on June 9, 2004 By Phoenixboi In Blogging
Im going to take a little twist on my blogging.

It's taken courage to write about this on here. At first I thought I shouldnt bring it up. But it is a part of me, and what has made me who I am today, especially how I view the world. So here it goes...

Ive been living with HIV (Human Immunodificency Virus) since I was 18, I am now 31. In that time I have seen people die around me, people reject me, people learn from me and people love me in ways I never dreamed imaginable.

To me living with HIV is a part of my everyday existence. You could say I've learnt to live with it. There isn't anything glamerous about it. It's life changing and it never goes away.

At the moment I am well. Really well. I have around 400 t cells, my viral load is around 230. It hasnt always been this good. The road has been rough along the way. I currently am on a regieme of medications called Anti retrovirals. I take them when I wake up and I take them when I go to bed. This ensures my constant reminder that i am living with this Virus. I can never forget it.

The Virus comes up everytime I have sex. Everytime I feel ill. Everytime I meet someone and form a relationship with them. It comes up everytime I bleed. The virus is like another entity living within my body with its own life. I am its host. I have learnt to accept its rythymn and flow with it, not to disrupt it or it kicks up a fuss like a baby.

At times I hate it. At times I feel like a leper. At times I feel like death. But with all this there are times when living with this virus has taught me alot about life.

It's a very personal issue for me. But hopefully I can help others going through it that read this, and hopefully I can help others who dont have to understand more about it. Maybe it will help save others from going through the same experience. I dont know what it will do but I know that most importantly I can have an outlet to express how I feel, and maybe it will help me heal in some way.

I first come into contact with this virus at the age of 18. I met this guy and had sex with him. Loads of sex. All of it was unprotected. At that time I didnt think about HIV, i was invincible, in my prime. Besides he was a counsellor for people living with HIV. If he had it he would have told me and he would have protected me from it. Unfortunately that wasnt the case. He had it. He didnt care. He didnt say anything to me. So I got sick.

I vividly remember going to the doctors with lymph glands in my neck swollen wondering why and the doctor asking me if I wanted a HIV test. I didnt think anything of it. Of course I didnt have it. Two weeks later the tests came back inconclusive. I had to have another test, this time it came back positive. He informed me that I had at most 6 months good health left, that I was going to die and that I had to inform my family and people I had come into sexual contact with.

I was 18. I hadnt come out to any of my family. I had a vision of my future. I was no longer invincible.

I confronted the guy. It didnt seem to bother him too much. I let out my anger. Why didnt he tell me? Why did he let this happen to me? Why did I let this happen to myself?. What was going to happen to me now?.

First thing I did was try and absorb as much information as possible on the virus. What it meant to have it, what my prospects were, what I could do and could no longer do. There wasnt much information back then. I was going to die. I had to get my life in order. I had to tell the people I loved, and I had to prepare for death.

Since that time I have seen my doctor every month. I have had that many blood tests that my veins are scarred with the needles. I have come to know more about my body and my immune system. I have taken toxic drugs to help fight it. I have taken herbs and potions to help my body. I have worked with people living with HIV, set up support groups, experimented with different methods of healing and talked with alot of people.

Thankfully I no longer am preparing for imminent death. Forteen years have passed and I am still here. I am healthy. I have the support and love from the majority of my family and friends. For this I am most thankful.

No longer do I have a vision of my future. No longer do I feel invincible. No longer do I see the world through the same eyes. I am still alive. Everyday counts. Everyday I learn something new. Everyday something changes.

As im about to post this..it has just started to rain. Only a little.







Comments (Page 4)
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on Jun 11, 2004
BOI !!!!!! The fact that you don't ever admit making a mistake leads me to believe that you are a very PRIDEFUL person. The sin of pride is the worst sin in the Bible. The sins of Sodom and Gammorah was not merely in homosexuality. God says the PRIDE of their sins bare witness against them. And that THEY DECLARE THEIR SIN AS SODOM, THEY HIDE IT NOT.

We are all sinners, but when we become boastful and prideful about our sins, we then turn into very sinful and evil people. Sin is something we should all be ashamed of, not prideful of. PRIDE OF WRONG DOING IS THE GREATEST SIN OF ALL!!!

BOI !!! Repent to God for your sins and mistakes or suffer the ravages of a burning hell !!!


I wanted to remind you, Judge NOT less Ye be judge. You are not the almighty judge and should NOT act like it. When that day comes, IF there is a god, we will answer for our sins to HIM, AS will you. So until that day please do not pass judgement. The greatest gifts people have is the gift of free thought, because someone does not believe like you does not make them wrong. If we were all a like life would be boring, instead of preching your misinformation you should listen to what is being said here. I hate to tell you this but the information you have on aids is false. Please go get informed before you try to teach others.

on Jun 11, 2004

BOI !!! Repent to God for your sins and mistakes or suffer the ravages of a burning hell !!!


Marvin~"Judge not lest ye be judged." Ring any bells dude? Looks like since you are sinning like this now~you're gonna be "suffering the ravages of a burning hell" YOURSELF. Perhaps Phoenixboi and I should be praying for YOUR lost soul big time, huh? BTW? There is some truth in what PB hinted at (insofar as your paranoia and the closet, etc.) .There's this little thing called "Internalized homophobia". In other words, since you are possibly ashamed of your own gay sexuality~you choose to bible bash those gays that are not ashamed of who they are. I mean, if I didn't know better~I would almost swear you are attempting to woo Phoenixboi  big time. All these passionate hate-filled messages you are leaving for him now, huh? What's up with that dude? Why don't you just call a gay hotline or something, and stop trolling on this thread. You have not contributed one single useful word to this discussion that I am aware of. So stop being so annoying dude. Christ, some people, huh? BLOG ON PHOENIXBOI!


~MadPoet

on Jun 12, 2004
Marvin
Your God must have you trembling in your boots! Thankfully my God has helped me through times which man you can not imagine. haven't made mistakes in my life. I consider the chioces I have made in my life to be just that choices. They are all leading me to the same place whether i get there going one way or going the other way, I choose my journey, and on that path I encounter different events or circumstances. Not good or bad, just choices. Im not going to judge you for your beliefs. One word of advice though. Look at all aspects of your life. Are you living totally and with complete honesty everything you believe in? Only you can be honest with yourself there. Your concious will be the one instantly to tell you whether you are or not. That my friend is the judge. The one thing that will give you termoil in your life if you arent true to yourself. This turmoil I believe to be the greatest hell and if you want sin.
Please Marvin if you are going to post a comment on this blog, I ask you not to be judgemental, racist, or homophobic. Most of all I ask you not to call me BOI or use capitals because I dont like people yelling at me. This is the only time I will say this. Otherwise I will blacklist you. I have left the messages you have posted on here so that your character can be revealed. It is an example of what not to be. An example of the bigotry that has helped the world to be in the mess that it is in now.
on Jun 12, 2004
I read some where that some of the drugs HIV patients take may be worse than HIV symptoms, if this is true, why take them? But at the same time you are living with HIV and have been for years so they must help some. I was wondering how has treatment changed from when you were younger to now?[/quote
Hey Copper Clark
yeah the pills are very toxic substances. The side effects sometimes are very debilitating, and unfortunately for some people their life is better not taking the pills than taking them. At one stage I took some pills which made me a zombie for the whole day. Sure it might be controlling the virus but what life is worth living if you cant live? Thankfully there are a number of different combinations now so most people have the choice of what meds to take and what side effects they can put up with. Most side effects disappear after about a month. But again fortunately in the west we have a system where we can choose and take what suits us and our lifestyle.
It hasnt always been this good though. That is why there is a low mortality in the west with HIV at the moment. The drugs are working and people are living longer and much fuller lives. The doctors now like to call HIV a manageable disease and no longer an instant death sentance. New drugs are coming onto the market every year. And I believe they are getting closer to a "cure" for better word.
This virus as insideous as it is has taught the medical world alot about the human body and the immune system. Unfortunately there has had to be many many people die in the process.
For future reference. If you do have an encounter, which I am sure you wont, but if you do have an instance of unprotected sex whether the condom has broken or for whatever reason and you find out your parter has HIV for the first 72 hours there is a treatment called PEP (Post Exposure Prophilaxis). It is there if you need it but it is a highly toxic regeme of the drugs at high doses.
Hope this helps.
on Jun 12, 2004
I would almost swear you are attempting to woo Phoenixboi big time.


Mad Poet I hope not!

Thanks for the encouragement again man. I sent you an email did you get it? cheers!
on Jun 20, 2004
Phoenixboi,

I've come quite late to reading this post. Ignoring the distasteful, and just plain inappropiate comments that have been left, I think that it is so brave of you to be so honest and open about this with us. I have friends with HIV who would love to have your courage, but are still crippled by their fear of the disease. I'm going to pass this link onto them and maybe some of your bravery will rub off on them! Not that they aren't brave, they are just really, really scared and surrounded by a lot of people who are even more scared of them. Bastard society. Sending you a big hug, and thanking you so much for this beautiful and moving article.

Suz xx
on Jun 20, 2004
Hey Floozie!

Thanks for reading and for your comment. It is really scary, it really is unpredictable. The only simple advice I can give is to live each day as it comes. To live your dreams as everyday is a new day and new adventures are around the corner. Find your support network and build it up. trust yourself and your intuition and you never know what can happen.

Please do pass this on. And if I can help more in anyway please let me know.

Cheers!
on Jun 20, 2004

trust yourself and your intuition and you never know what can happen.


PB~I totally love this quote. Glad more folks are taking a peek at this article~it really is one of the best ones on here I've seen so far. Blog on big time!


~MP


P.S. Got your email~glad everything is cool with you now, etc. Thanks!

on Jul 06, 2004
Hi! I am in admiration of your strength and courage to share your story! It's fantastic to see such a positive outlook on life! I really like how you explain your experience with living with HIV. It's easy to read about what happens with the body and HIV, to know about all the effects on the immune system, but I have not ever really come accross an honest expression of how a person living with HIV feels. In research articles they are usually "censored" in that it reads like the person is telling the researcher what they want to hear as a-posed to what the person really feels. You're FANTASTIC! *hug*
on Jul 06, 2004
Hey there Keo Lin!
Thanks so much for your comments! They are very inspiring! Sorry for the late response I have been away from the computer doing some stuff getting ready for my new job.
I try and make my experience told on here as real as it is for me, thereby other people can understand me and try and get a feel of what Im going through and maybe it might help as well.
Thanks again for your comments and drop by again soon!
on Jul 07, 2004
Powerful stuff. I can't beging to imagine what you have faced, but I respect your courage and faith in life. Stay strong!
on Jul 07, 2004
Phoenixboi...permit me to give you a huge hug.

My mother died of AIDS in 89. She got it from her second husband. And I can tell you that people were not so enlightened then. Especially in the small town where she died.
I learned more about AIDS after she died then I ever thought I wanted to know from the nurses and my own research.
I encountered people who were afraid to come near me due to her death.
It's changed...slowly. Because of brave people like you.

Hang in there, Sunshine. I admire you.
Ali
The Misfit Chick
on Jul 07, 2004
Stay strong


Thanks CS guy! It is amazing the strength that I have gained with this. And hopefully I can share it with other people.
on Jul 07, 2004
permit me to give you a huge hug.


Hugs right back at ya Misfit Chick! You know what im going through and what happens. For the memory of all those that have gone with this disease and for the insight and help it is giving me thats why im writing about it. The stigma this disease causes in the community is amazing and through writing I am coming out of my shell with it. Thanks for your comment and keep blogging.
on Jul 09, 2004
wow... that's all I can say. I have never met anyone with HIV and you really have made me think about all this stuff. It didn't really hit me that there are actually people who live every day with this disease. You'll be in my prayers. *hugs you* By the way, thanks for writing about HIV... You have opened my eyes to be careful and to realize that i'm not invincible either. Thanks.

Ashlee
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