The Purpose of Life is to Live it..not to spend all of it searching for the purpose. Live Live Live like every second was your last.
Blogging frommy heart
Published on June 9, 2004 By Phoenixboi In Blogging
Im going to take a little twist on my blogging.

It's taken courage to write about this on here. At first I thought I shouldnt bring it up. But it is a part of me, and what has made me who I am today, especially how I view the world. So here it goes...

Ive been living with HIV (Human Immunodificency Virus) since I was 18, I am now 31. In that time I have seen people die around me, people reject me, people learn from me and people love me in ways I never dreamed imaginable.

To me living with HIV is a part of my everyday existence. You could say I've learnt to live with it. There isn't anything glamerous about it. It's life changing and it never goes away.

At the moment I am well. Really well. I have around 400 t cells, my viral load is around 230. It hasnt always been this good. The road has been rough along the way. I currently am on a regieme of medications called Anti retrovirals. I take them when I wake up and I take them when I go to bed. This ensures my constant reminder that i am living with this Virus. I can never forget it.

The Virus comes up everytime I have sex. Everytime I feel ill. Everytime I meet someone and form a relationship with them. It comes up everytime I bleed. The virus is like another entity living within my body with its own life. I am its host. I have learnt to accept its rythymn and flow with it, not to disrupt it or it kicks up a fuss like a baby.

At times I hate it. At times I feel like a leper. At times I feel like death. But with all this there are times when living with this virus has taught me alot about life.

It's a very personal issue for me. But hopefully I can help others going through it that read this, and hopefully I can help others who dont have to understand more about it. Maybe it will help save others from going through the same experience. I dont know what it will do but I know that most importantly I can have an outlet to express how I feel, and maybe it will help me heal in some way.

I first come into contact with this virus at the age of 18. I met this guy and had sex with him. Loads of sex. All of it was unprotected. At that time I didnt think about HIV, i was invincible, in my prime. Besides he was a counsellor for people living with HIV. If he had it he would have told me and he would have protected me from it. Unfortunately that wasnt the case. He had it. He didnt care. He didnt say anything to me. So I got sick.

I vividly remember going to the doctors with lymph glands in my neck swollen wondering why and the doctor asking me if I wanted a HIV test. I didnt think anything of it. Of course I didnt have it. Two weeks later the tests came back inconclusive. I had to have another test, this time it came back positive. He informed me that I had at most 6 months good health left, that I was going to die and that I had to inform my family and people I had come into sexual contact with.

I was 18. I hadnt come out to any of my family. I had a vision of my future. I was no longer invincible.

I confronted the guy. It didnt seem to bother him too much. I let out my anger. Why didnt he tell me? Why did he let this happen to me? Why did I let this happen to myself?. What was going to happen to me now?.

First thing I did was try and absorb as much information as possible on the virus. What it meant to have it, what my prospects were, what I could do and could no longer do. There wasnt much information back then. I was going to die. I had to get my life in order. I had to tell the people I loved, and I had to prepare for death.

Since that time I have seen my doctor every month. I have had that many blood tests that my veins are scarred with the needles. I have come to know more about my body and my immune system. I have taken toxic drugs to help fight it. I have taken herbs and potions to help my body. I have worked with people living with HIV, set up support groups, experimented with different methods of healing and talked with alot of people.

Thankfully I no longer am preparing for imminent death. Forteen years have passed and I am still here. I am healthy. I have the support and love from the majority of my family and friends. For this I am most thankful.

No longer do I have a vision of my future. No longer do I feel invincible. No longer do I see the world through the same eyes. I am still alive. Everyday counts. Everyday I learn something new. Everyday something changes.

As im about to post this..it has just started to rain. Only a little.







Comments (Page 2)
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on Jun 10, 2004

YOU GAYS MUST REALIZE THE HARM IN YOUR LIFE STYLE AND CHANGE YOUR WAYS ALSO

Who has he harmed?  It sounds like he has no problem telling his partners that he has HIV.  Adults have the right to decide what they do with their lives.  Of course, I also believe what happens behind closed doors should remain there.

Drugs are illegal, being gay isn't.  I don't think that you can compare your drug abuse with a dishonest person that he had sex with.

on Jun 10, 2004
Since when is HIV/AIDS restricted to the gay community? Anyone having unprotected sex or sharing needles puts themself at risk. It only takes one time. Marvin may have had the good sense to stop taking drugs, but apparently didn't have the good sense not to take them to begin with. You don't know what's in that pill you copped, what you're smoking. You don't know where your partner's been.

Thank you for sharing Phoenixboi. You're a testament to the strength humans can possess.
on Jun 10, 2004
Nice place Madpoet. How about a poem written about moi?
on Jun 10, 2004
Even if being gay is "wrong" Phoenix is right, even the "best" person could be stricken with HIV tommorow, or run over by a bus. AIDS is NOT a gay disease, typing in all caps is obnoxious to those who are reading, so is being a self righteous know-it-all, and being gay is not a "sin" or inherently evil or dangerous lifestyle.

This was an awesome, honest, heart breaking post. Marvin needs to pull his own plank out and leave normal, thoughtful, honest people alone.
on Jun 10, 2004
Thanks for sharing your experiences.
on Jun 10, 2004
Also, Marvin, could you try NOT to type in all caps.
on Jun 10, 2004
now now, we're all free to use whatever font we choose. Be real. Peace.
on Jun 10, 2004
Hi MadPoet.

I hear you. I thankyou. Ill be chattin with you soon. Thankyou mate.
on Jun 10, 2004
Im glad Marvin is posting here.
He is an example of the extreme to why this virus has caused so much stigmatism in society, why people living with HIV have mostly had to hide their status and why people like Ryan White (remember him?) had it so bad in the early days.
Unfortunately this stigmatism is still around. Because of this that is why people dont openly talk about their status, why it is still being passed on and why people arent after all these years educated or dont want to be.

on Jun 10, 2004
Mikimouse
Ive been very fortunate that the parters I have had are not bothered by me being positive. It is easy. We use protection. Safe sex is very easy to do. Wear a condom. Simple.
on Jun 10, 2004
Hey MAdPoet..
How do I get to chat with you? Ive checked your site out.. what do I need to do?
Cheers!
on Jun 10, 2004
All I know to say: Hang in there.
on Jun 10, 2004
No mikimouse, the sin of the one that had it and did not tell him.
on Jun 10, 2004
OK Draginol.........I guess all caps may be a bit annoying to some people.
on Jun 10, 2004

Hey MAdPoet..
How do I get to chat with you? Ive checked your site out.. what do I need to do?
Cheers!


Phoenixboi~just send me an email: smartjock1982@yahoo.com


It will be totally cool to chat with you dude!  KEEP ON BLOGGING BIG TIME!


~MadPoet


 


 

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