The Purpose of Life is to Live it..not to spend all of it searching for the purpose. Live Live Live like every second was your last.
from the labs of science to the bodies of men.
Published on June 10, 2004 By Phoenixboi In Blogging
One of the most crucial things about living with HIV is taking medication.

There is a whole list of medications now available to people in the west to help people living with HIV to continue to keep living.

Sounds good? Ill let you in on something.

I first started taking the meds seven years ago. I was on the brink. My viral load was 1 million 500 thousand. That means for every 10 mls of my blood there existed 1500000 copies of HIV. I had 70 t cells. I had lost about 10 kgs in weight. I was suffering from periodic trans iscemic attacks (or mini strokes) and my tongue was covered in Oral Hairy Leukoplakia. All signs my immune system was under huge attack.

It was a huge battle for me to start meds. I was totally against them. They were toxic, a sign that I was dying, an admission that something was wrong. I was a vegetarian, I took vitamins by the handful, herbs and potions that seemed to consume my existence. There was no way that I was going to poison my body with the very pills that had killed many people before me.

AZT was given to people with HIV in the 80's at very highly toxic levels. There was a scare going on in the world noone knew what was happening and people were crying out for modern science to help. Dont worry about the trials there wasnt time. It killed alot of people needlessly.

I went to my doctor. She told me I needed to take them or die. That was my alternative. No choice. Well I either took them or died.

I took them. Quickly, amazingly even to myself my health returned slowly. With that came the side effects. Nausea, sweeping nausea like my whole insides was coming out. Headaches and diarreha sitting on the toilet 7, 8, 9, 10 times a day. But my health was coming back.. the crucial bloods were showing immune restoration. But I felt like shit. So I changed pills. Over and over again, I have changed pills. I really am lucky I have that option.

So its been seven years Ive been on medication. Seven years until last year. There is now a test called resistance. It measures the virus, and cross checks it against the medications to see if the virus has mutated so that the meds dont work anymore. They arent effective against the virus. It changes. The sucker learns quickly how to survive. So for a period of 6 months I stopped medication. I had supposedly run out of options.

My body quickly responded to the lack of medication. My viral load shot up, the tongue again became coated and I felt tired. More tired than I had ever felt. My body was under attack.

Ive started medication again. Im putting up with the side effects. I dont want to let go of this yet. There is much more I need to accomplish.

Im lucky. There are people who are resistant. Cant take anything. It just doesnt work. There are people who cant afford medication. In some countries like the USA they cost over $1000 a month. In some countries like Africa they arent available at all. Im lucky. Ive got a chance to make it. And im going to take it by the horns and run with it.

Im going to watch the rest of Angels in America now. It rained alot tonight. There was a thunderstorm. The air is clear. The energy is coming back to normal.

Comments
on Jun 10, 2004
Wow -- I was wondering about the AZT and if you were on them when I was watching the movie tonight.

I really really liked it in the end (bit weird in places) and I wish I could quote that whole last scene with Prior etc at the Angel. I think the moral of the story is tolerance - it was good.

Are you in Aus? What state? -- I'm a QLDer - it didn't rain here but the forecast has been rain all week - thank goodness it didn't I had washing on the line
on Jun 10, 2004
I'm sorry, I just don't know what to write. My thoughts are with you, for whatever that's worth.

It rained big time in Sydney tonight, big mother of a storm went through the Eastern Suburbs, dunno how it was elsewhere though.
on Jun 10, 2004
Hey trina_p! I went on the AZT years ago. Made me feel really horrible, really bad nausea. I cant take them anymore cause I am resistant to them meaning they dont do anything to the virus in my system anymore. Really loved the movie last night. Yeah it was weird. One of my favourite parts was when Al Pacinos character Cobin was dying. He played it really well dont you think?

Im in NSW ..we had a great storm last night. Loved it.
on Jun 10, 2004
Hey Mack. Thanks thoughts are always good! Loved the storm. About time we got some rain! Can you feel the air cleaner?
on Jun 10, 2004
potions and concoctions. Peace be with you. Peace.
on Jun 10, 2004
Peace to you to mikimouse
on Jun 11, 2004
Thanks for posting. I asked about this in your first post because I didn't have a link to all your posts. How do you pay for drugs if they cost so much, if I may ask?
on Jun 12, 2004
How do you pay for drugs if they cost so much, if I may ask?


Here in oz fortunately they are on the PBS so I pay minimal cost. I know though that the guys in the USA pay high for them. I dont know how they manage. Most work just for paying meds, others who dont work live on minimal income pay their meds and cant afford food. It aint a good system you have there.

Thanks for the questions Copper. Im sure they are helping to dispel alot of myths. Cheers!